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Frequently Asked Questions on National Data Set Project

posted Sep 4, 2012, 7:51 AM by Unknown user

The attached file provides answers to the commonly asked questions about the national data set for paediatric rehabilitation project.

Hospital News Article on the National Data Set

posted Jun 13, 2012, 6:45 AM by Unknown user

The article on the National Data Set for paediatric rehabilitation by Vicky Walker has been released in Hospital News on June 11, 2012! 

Still Time to Register! - Comparing Participation in Activities Among Children with Disabilities

posted Jun 7, 2012, 12:39 PM by Doug Maynard

Presenter

Dr. Louise C Mâsse
Associate Professor
Department of Pediatrics / School of Population and Public Health
University of British Columbia

Synopsis

Children with disabilities are at risk for decreased participations in a wide range of activities as participation may be limited by an underlying medical condition, physiological impairment, or characteristics of the social and physical environment. While specific disability subgroups may be at higher risk for activity limitation and participation restrictions, it is important to examine whether all children with disabilities have decreased participation. The primary purpose of this talk is to provide a participation profile for children with disabilities in Canada and to compare whether children with a neurodevelopmental disorders and disabilities had similar level of participation in a wide range of activities than children with other chronic health conditions.  The 2006 Participation and Activity Limitation Survey (PALS) children dataset collected by statistics Canada was analyzed.

Resources

This live webinar presentation will air on:  June 19, 2012, 11:00am-12:00pm (EST)

Click Here to Register!

The full audio/visual recording will be posted on this page following the event.

Presenters Bio

Dr. Louise Mâsse is an Associate Professor in the Department of Pediatrics at UBC, with a joint appointment with the School of Population and Public Health at UBC.  Dr. Mâsse is a level 2 scientist at the Child and Family Research Institute (CFRI). Prior to joining UBC, Dr. Mâsse was the Acting Branch Chief of the Health Promotion Research Branch at the National Cancer Institute (NCI) at the National Institute of Health (NIH) in Bethesda, Maryland.  Finally, from 1994-2001, Dr. Mâsse was an Assistant Professor at the University of Texas School of Public Health.  Dr. Mâsse’s expertise is in psychometric, physical activity, and obesity prevention.


Volunteers Needed for Study to Develop a Toolkit of Participation Assessments for Children who Use Power Mobility

posted Jun 7, 2012, 12:38 PM by Doug Maynard

Researchers at Sunny Hill Health Centre for Children and the University of British Columbia in Vancouver BC, are conducting an online Delphi survey with parents, therapists and researchers who have experience with children between the ages of 18 months to 12 years who use power mobility.

The purpose of this study is to develop a toolkit of participation assessments (to be known as the POWER Mobility toolkit) for children 18 months to 12 years of age who use power mobility. Recruitment is taking place across Canada.

Please visit the link to learn more about the study: http://www.bcchildrens.ca/Services/SunnyHillHealthCtr/Research/power-mobility-toolkit/default.htm

 

 We are looking for:

1/ volunteers - if you are a parent, therapist or researcher with expertise in power mobility, please consider participating

2/ help - to spread the word about the study, especially to parents that might be interested

Please forward this information to those who might be interested in participating in the survey.

 

For further information please contact:
 Debbie Field, M.H.Sc. O.T., PhD Candidate, Occupational Therapist
 Telephone 1-604-737-6314        E-mail dfield1@interchange.ubc.ca

Stay up-to-date with CAPHC

posted May 16, 2012, 7:52 AM by Unknown user

Want to stay up-to-date with CAPHC? Want to get the latest information about upcoming webinars, current programs and the 2012 CAPHC conference in Vancouver? Simply follow CAPHC on twitter (@CAPHCTweets), like our profile on facebook and you won't miss anything that is happening at CAPHC.

   


A National Data Set for Paediatric Rehabilitation

posted May 8, 2012, 6:56 AM by Unknown user

CN-CYR is now undertaking the development of a high quality national data set that includes functional/
developmental outcomes and service delivery data on infants, children and youth who access rehab services. This
data set will be used to facilitate provincial comparisons and identification of best practices and benchmarks across
Canada to support high quality service provision. A phased-in approach to implementation is being proposed with an
initial focus on outpatient services for clients with cerebral palsy or autism spectrum disorders.

Parenting Matters! Part 2 - available for viewing

posted Apr 23, 2012, 7:33 AM by Unknown user

"Parenting Matters! Part 2 - Fathering in the Context of Childhood Disability and Health Conditions" presented by Ted McNeill and David Nicholas was the second webinar of the CN-CYR webinar series. 

For those of you that were not able to see the live presentation, the full recording is available on the CAPHC Knowledge Exchange Network (http://www.ken.caphc.org) at: http://ken.caphc.org/xwiki/bin/view/ChildDevelopmentRehab/Parenting+Matters%21+Part+2+-+Fathering+in+the+Context+of+Childhood+Disability+and+Health+Conditions

CAPHC and CN-CYR are part of the 7th Edition Groupe Perron Event

posted Apr 12, 2012, 10:58 AM by Unknown user

CN-CYR and CAPHC are proud to be part of this year's fundraising event of Groupe Perron. The event will take place on Saturday August 25th at the Domaine Les Brome vineyard.

Money raised through our participation in the 7th Edition of the Groupe Perron Event will be directed specifically to our work to support children with cerebral palsy and other childhood disabilities. Being part of this event allows CAPHC and CN-CYR to continue improving the health and well-being of Canadian children and youth and to helping their families get the support and resources they need.

For more information on the 7th Edition Groupe Perron Event please view the attached brochure.

Parenting Matters - Part 1 Webinar is Now Available for Online Viewing

posted Mar 5, 2012, 12:45 PM by Doug Maynard

Thank you to everyone who made our inaugural webinar, "Parenting Children with Neurodevelopmental Disabilities: What Do We Know, and What are the Opportunities?" a success!  We had almost 200 people register for the webinar, which demonstrates the relevance of this important work to our rehabilitation and child development community.  

For those of you that were not able to see the live presentation, the full recording is now available on the CAPHC Knowledge Exchange Network (http://www.ken.caphc.org) at:  http://www.ken.caphc.org/xwiki/bin/view/ChildDevelopmentRehab/Parenting+Matters%21+Part+1+-+Parenting+Children+with+Neurodevelopmental+Disabilities%3A+What+Do+We+Know%2C%C2%A0and+What+are+the+Opportunities%3F

Be sure to register for the next edition in the CN-CYR Webinar Series and part 2 from our colleagues in the CIHR Team in Parenting Matters!  


CN-CYR Webinar Series Starts with "Parenting Matters!"

posted Jan 31, 2012, 11:22 AM by Doug Maynard

CIHR Team in Parenting Matters! - The Biopsychosocial Context Of Parenting Children With Neurodevelopmental Disorders In Canada

“Parenting is a dance led by the children.” What people in the developmental disability field often forget is that for reasons beyond their control many children with disabilities don’t dance very easily! We are a group of Canadian health services and social scientists, funded jointly by CIHR and the Bloorview Research Institute, exploring these issues in several ways:
  1. by extensive literature syntheses;
  2. by a review of legal and policy frameworks that affect families of disabled children;
  3. by analyzing population health data to explore parenting issues at a community level; and
  4. through a mixed-methods study with families in four Canadian cities.
In the latter, we expect to engage 60 families in each city to complete a package of questionnaires developed with our National Research Advisory Group, and then to invite 10 mothers and fathers from each city to participate in face-to-face qualitative interviews to explore their experience of being a parent to a child or youth with a neurodevelopmental disorder (e.g., autism, global developmental delay, etc.).

Part 1 - Parenting Children with Neurodevelopmental Disabilities: What Do We Know, and What are the Opportunities?

February 28th, 2012 at 11:00 - 12:30 ET.  Click here to register!

“Parenting is a dance led by the children.” What people in the developmental disability field often forget is that for reasons beyond their control many children with disabilities don’t dance very easily!
 
We are a group of Canadian health services and social scientists, funded jointly by CIHR and the Bloorview Research Institute.  The main purpose of this webinar is to share what we have learned to date about parent health and well-being, and about parenting as reported in the NLSCY database. We will report on the progress of the study, and speculate about the potential utility of the findings for prevention and intervention studies to help parents on their parenting journey with children with neurodevelopmental disorders. We will also seek people’s advice about KT opportunities once the
studies are done.

Presenters:
  • Dr. Lucyna M. Lach, Associate Professor, School of Social Work, McGill University
  • Dr. Peter Rosenbaum, CanChild Centre for Childhood Disability Research, McMaster University 
  • Dr. Rubab Arim, Research Scientist, Ottawa Hospital Research Institute, and Research Analyst, Health Analysis Division, Statistics Canada
Click here for more information, or to register for this webinar.
 
Part 2: Fathering in the Context of Childhood Disability and Health Conditions

March 28th, 2012 at 11:00 - 12:30 ET.  Mark Your Calendars!

More information to come!

Presenters:

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