The attached file provides answers to the commonly asked questions about the national data set for paediatric rehabilitation project.

Presenter

Dr. Louise C Mâsse
Associate Professor
Department of Pediatrics / School of Population and Public Health
University of British Columbia

Synopsis

Children with disabilities are at risk for decreased participations in a wide range of activities as participation may be limited by an underlying medical condition, physiological impairment, or characteristics of the social and physical environment. While specific disability subgroups may be at higher risk for activity limitation and participation restrictions, it is important to examine whether all children with disabilities have decreased participation. The primary purpose of this talk is to provide a participation profile for children with disabilities in Canada and to compare whether children with a neurodevelopmental disorders and disabilities had similar level of participation in a wide range of activities than children with other chronic health conditions.  The 2006 Participation and Activity Limitation Survey (PALS) children dataset collected by statistics Canada was analyzed.

Resources

This live webinar presentation will air on:  June 19, 2012, 11:00am-12:00pm (EST)

Click Here to Register!

The full audio/visual recording will be posted on this page following the event.

Presenters Bio

Dr. Louise Mâsse is an Associate Professor in the Department of Pediatrics at UBC, with a joint appointment with the School of Population and Public Health at UBC.  Dr. Mâsse is a level 2 scientist at the Child and Family Research Institute (CFRI). Prior to joining UBC, Dr. Mâsse was the Acting Branch Chief of the Health Promotion Research Branch at the National Cancer Institute (NCI) at the National Institute of Health (NIH) in Bethesda, Maryland.  Finally, from 1994-2001, Dr. Mâsse was an Assistant Professor at the University of Texas School of Public Health.  Dr. Mâsse’s expertise is in psychometric, physical activity, and obesity prevention.

Researchers at Sunny Hill Health Centre for Children and the University of British Columbia in Vancouver BC, are conducting an online Delphi survey with parents, therapists and researchers who have experience with children between the ages of 18 months to 12 years who use power mobility.

The purpose of this study is to develop a toolkit of participation assessments (to be known as the POWER Mobility toolkit) for children 18 months to 12 years of age who use power mobility. Recruitment is taking place across Canada.

Please visit the link to learn more about the study: http://www.bcchildrens.ca/Services/SunnyHillHealthCtr/Research/power-mobility-toolkit/default.htm

 We are looking for:

1/ volunteers - if you are a parent, therapist or researcher with expertise in power mobility, please consider participating

2/ help - to spread the word about the study, especially to parents that might be interested

Please forward this information to those who might be interested in participating in the survey.

For further information please contact:
 Debbie Field, M.H.Sc. O.T., PhD Candidate, Occupational Therapist
 Telephone 1-604-737-6314        E-mail dfield1@interchange.ubc.ca

1. by extensive literature syntheses;
2. by a review of legal and policy frameworks that affect families of disabled children;
3. by analyzing population health data to explore parenting issues at a community level; and
4. through a mixed-methods study with families in four Canadian cities.

Part 1 - Parenting Children with Neurodevelopmental Disabilities: What Do We Know, and What are the Opportunities?

February 28th, 2012 at 11:00 - 12:30 ET.  Click here to register!